Thanks for the advice everyone, had a good day yesterday until I realised I lost my Visa card and this provoked wave tension through my body. I dealt with it though, went to bank and ordered new card and got cash to last me till next week. Once I did this the waves had gone and I went for a massage. I then had the kids on my own from 5pm and this provoked my symptoms, especially driving them in the car a short while without earplugs. However I managed, and got them all to bed by 9pm. The only thing is by doing less, I was awake till 12 and woke at 445am.

Funny you should mention it, I have been shopping today, it is a good test of progress, because it used to overload me, today I managed without sunglasses for it. Went to 2 supermarkets, a drive thru shop, and had a break in McDonalds and did 10 miles driving. Just having a 30 minute rest before embarking on lifting the shopping out of the car.

Would just love if the noise and light sensitivity went, its the worst thing to have with young children. At least I am now on my feet and the head pressure/headaches have gone and with it the chronic fatigue. When I had all of these symptoms (and more) I wasn't a functioning parent, at least I am becoming a parent again as symptoms come and go, so I have to be thankful for that.

You need activity in order to sleep better. I just need to get a balance where I do enough to sleep without provoking symptoms. Importantly by keeping a diary and monitoring triggers I no longer have head pressure. If I did exercise or over exert myself this would certainly come back, and this would be a step backwards. Slowly but surely making progress.