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Member
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Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Member
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Hi Abby,
please remember EDS is a syndrome so you may have all the symptoms or only a few. The ones Ive told you about are mainly related to EDS hypermobility and there are about 10 types known about.
I dont want to worry you but I really wouldnt rule it out until he has seen a geneticist.
Some people with EDS go through their lives with no problems at all completely unaware that they have it. Others know from birth or are like me diagnosed aged 37!
With the Marfans habitus its still work checking out and ruling out.
Rach
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Diagnosed with:
Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa
And Myasthenia is still a possible diagnosis depending on which Dr I see.
My blog address is
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Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can,
And the wisdom to hideThe bodies of Doctors I shot
When they said,"You're perfectly healthy,
It's All In Your Head."
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