I felt the same way 100% and he's right, there will be times you won't be able to do certain things but make sure your family knows it's ok to go without you and don'tbe upset about it! Just use that time to grab your shades and sit outside and relax a bit. My boys wanted to go hiking an old waterfall area and I knew that at that point I wasn't up to it so I sat on the hill feeling a little sad... then a squirrel came up and i fed it and watched him play and it made such a difference in my whole outlook.

I"m sorry yours took so long to diagnose. I am still in that hole. No one knows why I am still having any issues so I am starting to brank out and find my own specialists who treat my symptoms and see if someone can't help. It sucks that we suffer longer, and go without life's fun because people don't know and won't research. I didn't ever find anything until I found this site where everyone basialcly found that ONE doctor who figured it out, finally.