I felt the same way 100% and he's right, there will be times you won't be able to do certain things but make sure your family knows it's ok to go without you and don'tbe upset about it! Just use that time to grab your shades and sit outside and relax a bit. My boys wanted to go hiking an old waterfall area and I knew that at that point I wasn't up to it so I sat on the hill feeling a little sad... then a squirrel came up and i fed it and watched him play and it made such a difference in my whole outlook.
I"m sorry yours took so long to diagnose. I am still in that hole. No one knows why I am still having any issues so I am starting to brank out and find my own specialists who treat my symptoms and see if someone can't help. It sucks that we suffer longer, and go without life's fun because people don't know and won't research. I didn't ever find anything until I found this site where everyone basialcly found that ONE doctor who figured it out, finally.
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Originally Posted by MiaVita2012
Thanks Mom~I am on the down side now of symptoms I have the least in year and half.I was miss directed for a year before I had finally got diagnosis and that was in Nov 2012....So I was pushing myself the whole time of The "unknown" diagnosis and it was not fun!But I made it threw and now after 4 months of nothing but rest....I am getting really bored now lol!I just don't want to ruin trip....maybe it's just the negative fears?IDK
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