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Old 03-02-2013, 04:15 PM
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Irelia1680 Irelia1680 is offline
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Location: Bay Area, CA
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Irelia1680 Irelia1680 is offline
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Join Date: Mar 2013
Location: Bay Area, CA
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Originally Posted by Kitt View Post
Scroll down to "Progression of HNPP". As you can see it can be slow for some and rapid for others. Not saying he has this but it might be worth having DNA testing for it. Actually, the whole site on HNPP is very interesting.

Not saying at all that he has this but it would be worth checking out. And to have a neurologist who knows about this.
Nor was I saying that he does not have it. While it does say that it can be rapid and some of it sounds right, none of this has been "activity based" at all as far as I can tell. It just seems strange that it would hit with this, to a large degree, body wide wombo combo all at the same time.

He is feeling somewhat better today, and he said the tingling in his abdomen is better.

The genetic test would definitely be worth having done if we can make the HMO do it. More information is never bad. And he could potentially have a mild case of HNPP with something else interacting heavily.
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"Thanks for this!" says:
Kitt (03-02-2013)