Bny806,

You are so right - dysautonomia / autonomic nervous system rears its ugly head with so many people that have autoimmune diseases yet everytime it is raised on this forum its seems to be brushed over.

Mestinon raises blood pressure (standing bp) and is given to people with orthostatic intolerance and postural orthostatic tachycardia syndrome to name just two of the many different forms of autonomic nervous system problems. (see the links I provided on another thread last week).

My heart goes like the clappers on occasion when my blood pressure is low 72/40 is enough to get it to 160 beats per minute as it works furiously hard to increase my blood pressure. However on occasion my heart rate can be normal when I have a low bp thats the nature of the beast.

If any of this is happening to you see a Dr who knows about ANS dysfunction and get fully checked out rather than assuming its a medication issue and ignoring it. There are diseases of the Autonomic Nervous system that are fatal (I dont wish to scare anyone) so ruling them out is always a good idea and very reassuring. Many ANS dysfunction symptoms can be treated and / or alleviate the very debilitating symptoms.

ANS dysfunction is closely linked to autoimmune disease, it may interest you to know many people who have it also have positive ACHR tests and arent diagnosed with MG.

Rach