If you got a second opinion, can't that 2nd doctor do something about it? You must have insurance, an HMO?, that says you have to be referred by a primary? You should then have your primary doctor changed. My son-in-law did that when he was misdiagnosed by his primary as having anxiety attacks. It turned out that my poor son-in-law had serious heart problems. He called his insurance and told them he needed to change primary doctors after we made him go to a specialist. It was then he found out about the serious heart condition.

It sucks having to be our own mouthpieces and climbing hills so much, but sometimes we have to do it.

I'd sure talk to the insurance company. And I agree with Moose that you should try to find your way home again.