Well, that's progress! Congratulations, not on the disease, but on finally getting it identified.
I think it's a good idea to get a referral to the doctor who did the SFEMG. That's how I got my neuro, too. Not every neurologist can do them, so the fact that he performed the test means he's an expert in neuromuscular diseases. At least I think that's right.
Congrats too on having told your daughter. If she has questions you can't answer, encourage her to post here!
Abby
Quote:
Originally Posted by cait24
Myasthenia gravis. I got the results of my SFMEG today. They were abnormal. So I can say I have a definitive diagnosis now of MG. I have an appointment next week with the neuro-optomologist. I am going to try to get a referral to the neuro who did the sfemg. I really liked his manner. I feel somewhat validated and relieved that we can progress in treatment now. The neuro mentioned options such as cellcept, IVIG, plasmaphoresis and thymus surgery. I hope I am a candidate for thymus surgery. I feel it is my best chance for a full remission.
I told my daughter. She took it ok but I am sure she has not had the time to research it on the internet. I sure she will come back with more questions and concerns.
kathie
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