Lou,
I am presuming that you have already looked online for answers to your problem. I followed up some related dystonis/dyskinesia type conditions to something called Meige's syndrome, and botox is mentioned. It is a wiki, so it isn't necessarily accurate information, but if you haven't read it before here is the link:
http://en.wikipedia.org/wiki/Meige's_syndrome
At the end it has these words: Palliative treatments are available, such as Botox injections.
If you think this article reflects some of what your condition is, and this has never been offered as an option, perhaps you could discuss it with your neuro to see what he says. it may not be appropriate, of course, in which case I apologise in advance.
There are also some 'distraction' techniques discussed.
Lindy.