Anacrusis, I didn't want to muck up Llonghair's post but I do want to discuss a few things - if you're open to doing so.
You wrote:
Quote:
But of course I am the one with the imaginary illness...
Bottom of the class....
Mostly asking stupid questions....
And keeping all of my own answers a secret from everyone else........
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Anacrusis, I honestly don't think sarcasm helps you or anyone else. No one is saying that you have an imaginary illness or are not deserving of care or asking stupid questions - because no questions are. I honestly don't know if you are keeping anything from us because you haven't been talking about your situation specifically.
I am sincerely concerned about your situation, Anacrusis. As far as I know, you haven't had any positive test results for MG. You have had some weakness but now you say that you are fine. You had breathing issues on planes but, as far as I could surmise from your posts, you said it was from sedatives.
If it were me, I'd want to know exactly what is going on and have proof for it. I sure wouldn't want to be treated for something I don't have though nor would I want doctors to miss something and not be treated. It's a difficult situation you're in.
So the problem remains: What is making you sick? What disease state do you have?
If you have MG, you deserve to be treated for it. My concern is that it doesn't appear, from what you've said, that you have had any positive test results. Is that correct? Do you have a positive clinical test for MG? Do you have ptosis? Are you on Mestinon?
My reasons for asking is that I am sincerely concerned that if you don't have MG, you need someone to help you figure out what IS going on. I'm not trying to upset you, only trying to ferret out what's going on so that you can get help.
What if doctors have missed something? What if it's something else and that something else is insidious or is getting worse? Or what if you do have MG AND something else?
Many of us know how hard doctoring can be. Sometimes finding the right answer of what's going on might take time. But taking too much time can end up hurting you.
So, how can we help? I'd really like to cut through the silliness and sarcasm to see what we can honestly and sincerely do to help you out. That is, if you want help.
Annie