Thread: 2nd opinion
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Old 03-05-2013, 03:51 PM
huntress huntress is offline
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Join Date: Jul 2012
Posts: 104
10 yr Member
huntress huntress is offline
Member
 
Join Date: Jul 2012
Posts: 104
10 yr Member
Default 2nd opinion

Hi, I just wanted to ask about immune suppressants, see i'm currently taking 90mg of mestinon every 4 hours except for nights I take the mestinon timespan. my neuro wants to put me on immune suppressants but I don't want to even try them with the side effects. That scares me so much. Right now, I have symptoms every day. from vision, to generalized weakness and almost always my speech but some days i feel normal for a little while. I know I cannot work, still waiting for my ssi hearing actually. I have a family history of heart problems, my mom has had 3 heart attacks, my aunt died from a massive heart attack, 2 other aunts have also had heart attacks. my grandfather also died from heart failure and thats only on my moms side. dads side also has problems. theres also strokes from dads side. and another thing is, i finally am loosing weight..dropped 75lbs in the last year and a half. I know I have MG and struggle daily with symptoms but I am happy with my weight now. I read immune suppressants can make one gain. I dont want that. any one else had immune suppressants? How did it work out for u?

so now my neuro is sending me to another neuro for a second opinion...to lehey clinic, it's like ahhh!

Last edited by huntress; 03-05-2013 at 03:53 PM. Reason: forgot to add about the actual title. lol
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