Thank yall so much!!! I really appreciate it - this whole limbo land thing is tough, as I just don't know what i'm dealing with.. I get IVIG treatments and they help but the drs seem perplexed by many of my symptoms - most recently I have realized hormones MAJORLY affect my symptoms - premenstral everything gets so much worse.... they are all stumped by this!?! heat of course makes me melt too..


anyhow, as far as the eye pain goes - it is much better, but no doubt still there - if I cough - the pressure of my eye causes much worse pain - is that common with ON?? it has become much more tolerable.. as far as I know I haven't had any new vision loss (from the visual field studies at the opth I do have visual field loss from previous ON).. I have so many dr's appointments it's hard to make more - ugh.. but I will be making another one here soon with opth too!

Erin- I can't imagine having so much loss of vision for a whole month!! how did you function?