Junior Member
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Join Date: Mar 2013
Posts: 10
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Junior Member
Join Date: Mar 2013
Posts: 10
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I agree, it's devastating to go to Dr after Dr only to find that you have yet another illness, disease or syndrome. I have been experiencing chronic pain for over 20 years. Starting with migraines at age 8, fibromyalgia at 14, degenerative disc disease at 18, ANKYLOSING SPONDYLITIS at 21, Arnold CHIARI at 25, and now Multiple sclerosis . at 28. Now I am confined to a wheelchair and am going blind in my right eye and have symptoms that don't fit with any of the diagnosis' I have so far, including a bleeding ulcer- which makes taking meds for autoimmune diseases difficult due to the possibility of bleeding out from a perforated ulcer. Filling out medical history becomes is like writing a novel, and hurts thanks to carpal tunnel syndrome and extensive nerve damage. I'm sure that you have all experienced the same looks that you get from New docs, as if you are a crazy hypochondriac, especially since I am so young. I am at the point now where I just want to give up, the pain and constant tests and pills and injections and not having just one diagnosis to deal with is almost too much to bear. If not for my children I likely would have already. The brain surgery almost ended me last year (surgery is difficult due to a mitral valve prolapse) but if I can survive that maybe I can find the strength to keep going. So I am right here with you all, and would be glad to give and receive support.I am new to the group but I look forward to getting to know you all.
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