(I meant to look up all the url's for each company listed below, so you could just click on them, but I got lost clicking back and forth)

From the same issue of The Scientist:
Groups or companies already active in gathering information from the actual end-users of the entire system: the patients.

Sage Bionetworks
Collects data from patient networks and clinical studies and combines them in a platform that allows researchers to run their own analyses. Also allows patients to donate data, in the form of photographs of their melanomas, for example, or lab reports from their doctors.

PatientsLikeMe
Users share personal health information, which company researchers analyze for potential trends, or sell to interested parties.

23andMe
Customers contribute their genomic and phenotypic information to research projects organized by the company.

Cure Together
Gathers survey data from patients about symptoms, treatments, and outcomes, then allows users to compare themselves to others (Note: 23andMe bought Cure Together in July 2012.)

Genetic Alliance
Collects patient blood and tissue samples and stores them in disease-specific biobanks, while serving as a networking organization for patient advocacy groups, universities, companies, and more.

Personal Genome Project
Gathers full and partial genome sequences from volunteers, as well as trait data.

Cancer Commons
Hopes to track genomic data from cancer patients and us rapid-learning algorithms to generate regularly updated models of cancer progression and response to treatments’. (Full disclosure: Cancer Commons' executive director is The Scientist's former editor-in-chief, Sarah Green.)

C3N Project
The collaborative Chronic Care Network (C3N Project) combines data from medical registries and patient records -- and hopes to soon supplement with patient-contributed data on diet, exercise routines, etc. -- and make those data available to the patients' doctors.

NextBio
Provides a platform for biopharmaceutical clients to search databases of clinical and molecular profiling data collected by hospitals, contract research organizations, and public databases.

Genomera
Provides an online platform for user to launch their own crowd sourced health studies; organizers come up with the questions, develop protocol, and invite other Genomera users to take part.

And this has just started.
Reverett123 has been right for years