I am so sorry that you are having these problems. The med. you ditched, I did also, as it effected my mood and did nothing for my PN.
My son is an OPT. That route is a good way to go, but you need more than that. You need to find a doctor in sink with what you need in medications. It sounds like your needs aren't being addressed adequately, or you are not being listened to.
I know it hurts to move around, but this is the best path to more independant living. If you can get regular physical therapy as well, that may help with your mobility. You will loose weight if you get a bit more active. I sit in the garden on my butt to do the gardening. There really is a benefit to any hobby you engage in. I did loose weight, and found I could walk alot better when I did. I sure wish you all the best Kathy. Your husband is wonderful, and I am glad you have him in your corner. ginnie