Quote:
Originally Posted by Zaniest18
Hello, my name is Jennifer, but everyone calls me Jen. Right now, that's about all I know.
I was diagnosed with fibromyalgia several years ago. Things seem to be changing and getting so much worse. My mother has MS and my sister's doc wants her to get checked because of things gong on. She also said I should get checked out. It's been mentioned before and I know sometimes they misdiagnose FM and MS. I'm scared. I'm mad at my body!! I feel so lost and alone. 
Jen |
Hi Jen,
I am new here too, but I'm happy to give support, advice, or even just listen. Whatever helps...
I have Fibromyalgia too, in addition to Arnold Chiari, Multiple Sclerosis, Ankylosing Spondylitis, Degenerative Disc Disease, Cervical Spondylosis, and a few other awful things that cause severe chronic pain. I know, it sounds unbelievable to have so many things at once, yet here I am.
I know that this is a scary and frustrating time while you are waiting for an accurate diagnosis, so being involved in a support group will hopefully help you manage through these difficult times. You are not alone, I have met many people in this support group as well as another for people with chronic pain, and we are here to encourage, listen, and support others.
Do you have a pain management doctor to help you manage your increasing pain? There are a lot of treatment options that can help with your pain, but it is important to have a knowledgeable and caring PM doctor to help you make the best decisions to treat your pain. If you feel that your symptoms go beyond that of FM I would encourage you to ask your doctor to set up and MRI to look for MS.
I wish you well and hope you find the answers you are looking for.
Blessed Be,
ChiariGirl84