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Old 03-08-2013, 10:47 PM
ChiariGirl84 ChiariGirl84 is offline
Junior Member
 
Join Date: Mar 2013
Posts: 10
10 yr Member
ChiariGirl84 ChiariGirl84 is offline
Junior Member
 
Join Date: Mar 2013
Posts: 10
10 yr Member
Default Same Problem

Quote:
Originally Posted by englishgardener View Post
desperation drove me to massive Google search on the jerking that happens to me every night when I stop reading and turn off the light to sleep and again in the early am and I can't go back to sleep cos I'm so busy jerking
I get a building sensation than wham! a huge jerk seems like in my tail bone and thighs , it is over so quickly that I can't tell exactly where it is coming from.
I take magnesium, electrolytes in coconut water , I weigh 124 pounds so not fat.
this is going on now for 6 years - sometimes it goes away just enough for me to stop worrying but 3 nights now and never ending jerks for hours on end , also get giant cramps in one leg and have benign fasciculations that come and go.
I'm thinking I should get an MRI of my spine in case I have some weird tumor or something.


I have the same problem. I know it comes from either my Chiari or MS, but these myoclonic jerks are so frustrating and irritating that I have so much difficulty falling asleep and I wake up so often just from the pain. I take Xanax when I go to sleep, it helps a little but the jerks can be so violent sometimes I end up hitting myself or my husband.

I hope that these jerks improve for you, and if you come across something that helps I would love some advice.

Have a great evening and Blessed Be,
ChiariGirl84
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