Hi everyone! I just stumbled on this site today. I've never been a member of any forum, much less one that is medically themed, but what's to lose? You all seem like a supportive bunch.
Up until last October I was a perfectly healthy, active, normal-in-every-way working mom. Then the symptoms started...heavy, fatigued feeling in my right arm, then leg, then other arm and leg, then back, neck, face, everywhere- all in about 3 weeks! Muscle twitches, tingling in hands and feet, sometimes other places. Cramped, tired jaw and cheek muscles- just smiling can be misery. Shakey hands, lips, tongue- like miniature tremors. Some days are worse, some better.
I've been to 2 different neurologists, had tons of tests- and all came back normal. The neurologists not only can't diagnose me, they don't even want to see me! They tell me the normal tests are "good news." For me, good news would be knowing what's wrong!
Are there any others out there with undiagnosed/undiagnosable neurological conditions? How do you cope with the uncertainty of having a problem, but not knowing if it's going to get better or worse?
Sorry for the ultra-long post. If you made it this far, thanks for reading!!!