I think the biggest reason we need to do all the work is because there is not much the doctors can do besides confirm a diagnosis of concussion and hopefully direct us to knowledge about work-arounds, accommodations and other coping skills so we can try to move forward.

It would be helpful if they would think outside the box and refer concussion patients for diagnostics of upper neck injuries and hormonal imbalances.

Since concussions are not imageable, doctors are often stuck with insurance company policies about referrals to specialists.

The Brain Trauma Foundation has been tasked with defining the diagnostic procedures and standards for a diagnosis of concussion for the U S Dept of Defense.

Unfortunately, since there are no drugs approved for treating concussion and none being developed, there is not a big pot of money to make so there is a weakness in the care system. Big Pharma and Medical Device companies drive much of health care.

The recent proliferation of Concussion Clinics is being driven by the school sports industry and Computerize Neurocognitive Evaluation companies. This has created a very profit driven model with return to play as the goal. Those who don't fit into the return to play model are left out. Unfortunately, the return to play model has not led to true concussion recovery protocols, just a "recovered enough to return to play" protocol.

This system leaves the rest of us to fend for ourselves.