My 14-year-old also has CRPS. She has been to both the Mayo (in Rochester, MN) and Cleveland clinic pediatric pain rehabilitation programs both have been helpful in helping her to regain some of her function and help her to deal more with the pain, but not have not done much to reduce her pain. Both programs are good and some kids seem to have great results with them while others have moderate or little results. They are both a little different: Mayo concentrates more heavily on education and coping skills, while Cleveland puts a little more emphasis on physical therapy. Just like what has been said by others in the forum, different things work for different people and it's hard to guess what the "perfect" solution is for any individual. You can private message me if you'd like to talk more.

I have talked to people who have had great results with both the Boston and Philadelphia programs. One thing that multiple providers have told me is that from their clinical experience, pain often does not go down significantly until a child returns to full function. My daughter has not been able to do this, and I wonder if this has something to do with the lack of relief. This would be one argument for the highly aggressive therapy that they offer at Philadelphia, however as InHisHands mentioned, it doesn't work for everyone.

Here is a link to a list of pediatric pain management programs. All have slightly different offerings; one might or might not be useful for your daughter. http://www.americanpainsociety.org/u...d-09-14-12.pdf

Best wishes. I'm sorry that your daughter and family are going through this.

Lori