Originally Posted by Mads

Hello Mrs D. Thank you so much for reply. What a fantastic site this is. Just being able to read that others have exactly the same experiences and symptoms has calmed me down. I felt that i was going mad. No one was listening.

My last cancer treatment was heavy radiation for suspected bony mets ten years ago 2000-2002 . My breast cancer was 14 years ago. I was 'left' on tamoxifen and Zoladex injections as im oestrogen positive for fifteen years stopped 2006 . I was radiated twice to the illiac crest area, then a larger radical blast to a wider field which covered illiac , entire left pelvic area and down left leg to knee(2000-2002).I was badly damaged from negligence plus ovaries atrophied ie 'burnt' to cinder as i wasnt shielded properly. The 'suspected bony mets and heavy treatment ' issue - thats another story.

Having been left disabled and damaged through previous inept NHS doctors im seeing history repeat itself with neurologist humming and haaring over confirming diagnosis and actually doing something now - everyday im getting worse. This has been progressing in an acute manner since New years eve 2012

Despite extensive research can not find that my swollen legs - thigh to knee area , red lobster rash fit in with any PN symptomology - worsens on any exertion. As i said its not DVT although symptomology presented cries out check again just in case its deeply inguinal .Ive hit my GP with cellulitis, erythromelalgia, vit deficiency...Ive demanded full body MRI - and full bloods again - having tuesday I dont know Mrs D im lost what else to do. Angioedema - tried antihistimine but nothing... my veins are just being squeezed to surface as i said this phlebitis both legs is worrying
My B12 is high. Do not take any ACD meds for blood pressure etc. Only take opiates for pain and thyroxine( unbelievable they hit my thyroid with radiotherapy - mistake again) for hypothyroidism. One Dr tried to tell me PN was opiate withdrawal.......take more so if it goes away you will know... Hmmm Ok. Guess you will appreciate how frightened i am becoming.

One thing the specialists are ignoring is that i have had two lumps come up in the left damaged groin in last 18 months. They were v painful, i was very ill - like flu and went of own accord after 3 -4 weeks roughly. Had ultrasound and lymph gland was abnormal shape but not cancer. Was not hernia. Plus bloods no infection. I havent felt well since these lumps .Have also been under dreadful stress last 18 months .

Would welcome your invaluable opinion/advice/thoughts.

God bless x