My heart goes out to you in this difficult time. Can you request a consult with an MG specialist? Are the current neurologists treating him, specialist in MG? Having a neuro experienced in MG is very important.

I think art chick is right that he needs MG treatment. Mestinon only temporarily relieve the symptoms. I take 90 mg 4 times a day and 180 time span at night and they are considering upping my dose because of increased weakness. And I can still walk and talk.

Here is a list of doctors associated with the MG foundation of America, maybe there is one in your area.
http://www.myasthenia.org/LinkClick....o%3d&tabid=306

ALso try to contact a teaching hospital in a local major city and ask for a referral to a MG or neural muscular specialist.

Please let us know how things go. A fellow MGer in trouble hits very close to home for us.

My thoughts and prayers are with you and your family
kathie