The neuro-op is out of state at a conference. They are going to try to manage me via phone calls & mestinon dose for a few days to see how I do. I have instructions to go to the local ER if I experience breathing problems. I am on instructions for complete rest and no physical activity until things are better managed. So I am out of work on disability for a while. I need the rest. I have been getting 12 -15 hours of sleep and am tired after 4 hours and need a nap with minimal physical activity. I am thinking this will work and would rather do this as a scheduled out patient.

So any suggestions, tips on what to do or know for plasmaphoresis?

kathie