Quote:
Originally Posted by cait24
Lesmon, I am so sorry you are going through this. I myself am also very depressed. Having all the symptoms of MG and still no diagnosis or treatment yet. I agree with you that the worst problem is the not knowing when or where the symptoms will suddenly get worse. Last week I was at work and felt good all morning. Then at lunch while reading the news on my computer my head suddenly dropped. When I tried to stand up after lunch, I could hardly move my legs. That is the worse I have ever been.
Jana, your situation sounds exactly like mine now. I go in to work early and get out early so sometimes I am even asleep in the recliner by 5 pm. Often, I am so exhausted, I have to fall asleep for a few hours so I have enough strength to climb the stairs to go to bed. I keep thinking "How long can I keep this up?" I have 6 years until I can take early retirement. But I am too afraid of the financial consequences to think about disability and they have not even definitively diagnosed MG yet. I do not want to lose my home.
kathie
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I was searching posts on plasmapharesis trying to learn what to expect when I found an old posts by myself that haunted me and needed to respond. I know I am probably violating some forum ettiquette. But the post of what I dreaded only 3 months ago has come to pass. I do not think I can continue working until I get some relief from MG treatment. The doctor agrees and I will be going out on disability for a while. I hope not permanently. I guess my body could take the pace for a while but MG has wore me down and I need to take a rest. Shortness of breath is the main concern. It is happening more often with less physical exertion and I cannot risk it anymore.
kathie