I started out many years ago with just numbness in my toes, I was in my early 30's, and pain, not weakness, in my legs. I ascribed the pain to varicose veins and ignored the numbness. I was 47 by the time I got to a neurologist and by that time the numbness had extended to mid-calf and I was having pain, weakness, and balance problems. Skin biopsy showed SFN, EMG showed LFN, both advanced. I now have pins and needles up to my hips and upper arms.

But I have a hereditary neuropathy, primarily axonal, and they do progress this way. Has your doctor ruled that out? I was always very strong until the past few years ( I'm 51), but was clumsy and uncoordinated since childhood.