Hello from Sydney Australia. I'm sorry to hear about your symptoms, it must seem like a big puzzle seeing so many doctors. I am not sure what you have,but it does sound neurological. You say that looking back you have had symptoms for years, remembering your initial symptoms and what was going on in your life from both a medical and a lifestyle perspective is actually important. You seem to be on the right path and seeing good doctors who have the sense to refer you onwards to specialists instead of chalking your symptoms down to 'anxiety' which is a major cop out. Keep copies of all your labs and results of all your testing when you go see the neuropathy specialist.

As far as what the future holds, in my time on this forum alot of people seem to have improved over time and moved forward with their lives. You should also expect to get better too. It just takes time to sort all this out. Wondering about the future when something like this happens is normal, but remember even perfectly healthy people dont know what the future holds or if they will be sick in some future date.
What I have learned is that pain symptoms must be managed, and excessive worrying will makes all medical issues worse.

Aussie

PS. Take a look at the stickies on top of board, there is a lot of good information there.