Abby, if we could solve this mystery, it would make my life a heck of a lot easier.
After my last crisis two months ago, I wrote down every single warning sign I had been having to be aware. I somehow thought I was giving myself "THE KEY" to unlock the mystery of how to head off a crisis or something. Since then, when I've had a few warning signs, I have realized that they don't mean I'm going into crisis. I have this list and really, it's kind of useless, because they come and go, and it really all comes down to whether I can breathe or not.
I spent every one of my 9 days in the hospital trying to figure out what I did wrong. The day before, I'd felt unusually great after being down for the count for the two weeks after Christmas. Then, BAM. The doctors kept reassuring me there wasn't any clear reason; I'd missed a week of IVIG before; I'd had a ton of stress before, and I'd sure as heck overdone before and NOT gone into crisis.
I can be horrible one day and suddenly wake up great the next. I've started to feel like MG is just one big ugly surprise party.
I really hope it's the Immuran doing this! I feel as if there is often no visible rhyme or reason to any of this. I WISH THERE WERE! I have pushed myself to the point recently where I thought I'd end up in the ER and woken up the next day ready to go again. After Christmas, I stayed in bed resting for two straight weeks and still went into crisis.
I hate the unpredictability. When I have good days, I never know how long the tease is going to last.
But there are factors we can sometimes pinpoint, and right now I'm saying a prayer that you increased Immuran is kicking in, and it's going to stay fantastic for you!!!
