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Old 03-14-2013, 02:44 PM
Mads Mads is offline
Junior Member
 
Join Date: Mar 2013
Location: England
Posts: 29
10 yr Member
Mads Mads is offline
Junior Member
 
Join Date: Mar 2013
Location: England
Posts: 29
10 yr Member
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Quote:
Originally Posted by Aussie99 View Post
Don't thank me too much I had one of my moments there for a sec and posted your response on another thread, and their response on yours. So sorry about that. I was really busy at work and try to do replies/responses between answering phones, emails and so forth. Proper reply above.
Good evening from UK. Yes , doppler and nerve conduction tests etc. to be performed Monday through Neurology. Felt yesterday that specialist was insinuating my symptoms were psychosomatic. Really! Maybe he would like the burning fire, pins/needles, cramps, and loss of muscle strength. I couldnt make my right leg react or my right arm on tuesday - today my leg is much better. Such a plethora of symptoms that change on weekly/daily basis. Its almost like this PN is progressing slowly since new years eve through a pattern - i dont know. Does anyone else experience this sense of progression and pattern? Like it works through a certain pathway. Some of the severe symptoms like dreadful nocturnal cramps have now morphed into total numbness.

My MRI was fine.No metastic spread or new carcinoma so great news.

I would love to hear about your experiences with symptom changes.I read your diary blog MrsD - thank you. Has given me the strength and courage to continue to fight the NHS for a definitive diagnosis.

Finding my loss of independence very difficult. I cant even raise my arms to wash my hair today. Occupational therapy are 'adapting' my home to make life easier. I feel useless. Does anyone go into periods of remission from PN. Can it start bilaterally and then unilaterally? I keep reading and researching until im blue in face - everything is so contradictory. I havent had or got flu but i feel like ive had flu for 3 months!

God bless x
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