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Old 03-14-2013, 05:16 PM
CRPSsongbird CRPSsongbird is offline
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Join Date: Nov 2012
Posts: 407
10 yr Member
CRPSsongbird CRPSsongbird is offline
Member
 
Join Date: Nov 2012
Posts: 407
10 yr Member
Smile Sorry to hear that!

Something that has helped me a LOT, is seeing a psychologist! One who specializes in PAIN management! While family and friends can be a great support system, they often fail to understand how hard the particular condition is to deal with. The constant nature of this type of pain can strain not only with the pain, but emotional exhaustion, and a little depression as well. You really should look into a psychologist, I see one and she does "bio0feed back" and "hypnosis". It is calming and helps to clear out the stress that builds up so quickly with this "disease".

I think it would be beneficial for your mother to go with you as well. I feel she should talk to an adult who has this condition, or with a doctor well experienced with RSD/CRPS as she should be the one to help support you the most. Have her check out the Mcgill Scale of pain chart.


http://www.ozrsd.org/forum/images/mcGill_Pain_Scale.jpg

She might be surprised at how high it's rated by DOCTORS! Keeping a positive mind set is key as well. Don't let your MIND pull you down and convince your body to feed into this condition. It will make it worse. You can't really "will" this away but the mind IS powerful and SOMETIMES it can help lessen your pain!

Here's another site for your mother, boyfriend,friends to maybe take a look at.

http://www.rsdhope.org/

I really really think you should talk to your mom and see if there are any Pain Psychologists in your area. It has helped me tremendously to reduce stress and feel more capable at handling the daily life dealing with this condition. Don;t get me wrong it's not a cure-all and I too still struggle a LOT with pain. My medications were recently changed for the better and now my daily pain is a heck of easier to deal with. Sometimes that can be half the battle! Also since you are young still growing and have school, narcotics for pain would probably not be the best choice for you. Talk to your doctor about Lidocaine patches!! That might be a great way to help alleviate some of your more intense pain and carry on every day things a little easier.

Please don't hesitate to ask questions and speak up to your doctors about pain. I'm sure it's harder for you as they have to be careful what to give a still growing patient. Anytime you need an ear or have a question or problem don't hesitate to private message me! Sometimes just venting to someone else who understands how this condition can effect you can help immensely!
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"Thanks for this!" says:
SaraMichellee.(: (04-24-2013)