Quote:
Originally Posted by Leesa
Hi Mads, and thanks for your kind words. My problems started in 1986 after my first spinal surgery. I've had problems ever since -- plus the 2nd surgery in 1995 didn't help matters.  Both surgeries were failures besides and i've been in agony since.
I also have peripheral neuropathy, particularly in the legs. The burning is intense, but is pretty much under control with meds. I WAS doing very well with pain by taking OpanaER, but then that even lost it's effectiveness and the pain began getting worse. So today my doctor put me on Norco 10/300 for breakthru -- which is a joke since I'm TERRIBLY hard to medicate. I'm the kind that wakes up on the operating room table during surgery under GENERAL anesthesia!!! And it's hard to tell anyone you're awake when you're laying on your FACE because they've given you curare so you can't move during surgery!  I've done that twice in the operating room, and once with the oral surgeon when he put me out to "dig out" 6 teeth!!! So if my doc thinks Norco 10/300 is going to work, he's NUTS. LOL
Anyway, the diagnosis of Fibro answers a lot of questions I had about why I had brain fog, had trouble swallowing, why the pain was so intense, and a myriad of other questions. 
Again, thanks for your reply. I'm sure I'll learn alot here. God bless & take care. Hugs, Lee |
Hello again dear friend. May I call you friend as i feel an infinity with your energy and what you have briefly told of your story. Cant believe our stories are so similar Leesa. Im a breast cancer survivor too, had bone mets in left hip which is how they damaged me in first place with over radiation/radical treatment- and not monitoring me. Depression - was suicidal last year 2011-2012 - thanks to a fab therapist im really getting grounded and all the depression stuff is at least better understood. A lot of it was anger, loss, emotional pain and the result of my partner being a functioning binge alcoholic. The years of abuse from such a wonderful man(when well) and my ill health, battle with cancer, chronic pain just brought me to my knees with mental breakdown. As i said im a chronic painer now for over 8 years but here in uk they use totally different drugs. Like you im hard to medicate - have very high tolerance level. Ive never woken up in surgery though... oh my god Leesa - you poor thing... thats horrific... barbaric! (HUG). Ive had stufff done awake just under local..... didnt feel it as such.. but yugh the fact you can hear them discussing it and almost watch.... not so nice. Im waiting to be diagnosed now. Think its PN or fibro as i said in last message. Neuro doesnt know. Thats why i asked what your symptoms were and whether the damn thing moves throughout your body... feet to legs and now my arm and face right side. Aplogies for typing but arm numb and im right handed. Think ill get myself that dragon voice program to type for me if this 'thing' doesnt improve.
No longer living with partner. He is really lost to the drink at moment. Dont know how he is hanging onto his job. I joined a support group for wives/family AA Al Anon who told me to stop facilitating. Loving him so much i thought i was helping him. Now im here, i totally love and adore him , he is my soulmate but i can not nor will i be with him until he is 'well'. I have to look after myself now - well tyhats what all the medical team keep telling me. Put myself first. Thats not easy when you are a helper and giver is it?
I ve been through a gamma of meds in past but I wanted to share the meds that they currently give me in UK for my longstanding chronic pain. methadone for pain(yes- horrid stuff), oxycodone for breakthrough, naxproxen , topiramate, pregabalin plus the rest...sleepers, antidepressant, antisickness
etc.....
For these new symptoms which hit me new years eve i have been given nothing!. Oh- thats because they dont know what is. My foggy brain is dire. I now have to write everything down or save a copy so i remember. Im real frightened Leesa, really frightened.
What they have given you is helping you you say? Is it nerve blocker? what else do you take?
Im new to this site- only a week. It is so helpful but also confusing - so many different experiences and symptoms. All of us seem to share one thing - difficulty in getting diagnosed.
I even found a site with people same experiences as us who think it may be spiritual enlightenment.... to do with kundalini energy etc.... Hmmmmm I dont know. What do you think? Really anything is possible.
Well, you are in my thoughts and prayers . Wishing you a more comfortable day today - painfree we never are, but 'more comfortable' sometimes.
God bless
x