Yes. And they must STOP doing this! This is the reason why I still have troubles adjusting and coping. I don't want other to know I have MG, because, just look it up: it's as easy as a nosebleed. Even some with MG theirselves tell me, well...MG aint that bad, there's treatment and all, and it isn't like rheumatism, cancer or MS.

They all keep saying this. Even some docs! I've said this many times, but I keep saying it: I have had all (still have) all the above. And you can't compare them! MG is truly my most difficult and dibilitating disease. They can't believe it becauce it isn't lifethreathening like cancer or doesn't create permanent damage.

The best auto immune disease, pfff, that's what they told me indeed. I truly hate it, and it doesn't make me feel "positive" or anything.

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Anyway, lesmom, back to you: you will learn to deal with it. If you make an appointment and at that time it seems like you can't make it, well that's just too bad but no harm done. I think everyone will understand you try your best but sometimes you just have to listen to your body.
Just keep making nice appointments, like christmas shopping, going to a theatre or cinema. You will learn to listen to your body, and exactly what it is you have to do (and have to don't) a few days before that appointment. Maybe you can use a wheelchair?
And you have something to look forward too!

If you feel it's just too much, don't hesitate and call it off. Everyone will understand, and everyone will rather have you feeling good than you feeling awful because you still went. And if they don't understand, it's their problem

Anyway, you have MG, and there is no way you can compare yourself with a healthy person. Even if you seem to be functioning like any other, like your husband sees you, it doesn't mean it doesn't cost you more energy. It doesnt mean you have to lay down before you're tired. But just listen to your body, not to what your mind is saying to you ("I am young so I must be able to do this!")

I don't know if you need professional help or not. Some find it beneficial, others don't. You can try and see where it goes. You only have this diagnosis for a very short while, it's not that weird you have all kinds of emotions!
I was relieved ("Im not crazy"), angry ("Im too young and I had plans"), depressed ("whyyyyyyyyyyyy") and ashamed ("Im not gonna go because I dont want them to see my wheelchair") in the first 4 months never been to a therapist, because that just doesn't work for me.

However, there's one thing that concerns me: you talk about your weightgain and control your eating. Maybe it's an idea to make an appointment with a dietitian?

What is normal anyway? It sounds very boring to me!
I always concidered "normal" a dirty word.