Quote:
Originally Posted by KathyWP
I was referred by my pcp doc to a Pain Management doc in my small town. Due to new KY law HB1, my pcp doesn't want to prescribe my pain meds, which are methadone and lorcet. The new pain doc said he did not believe I had RSD because it is such a rare condition. It is as if he has already made a decision without ever speaking with me. I have been diagnosed by several tests, namely bone scan, temperature studies, and nerve blocks. I do not want to go thru these tests again so I am getting my records sent to the new doc. I've had RSD since 1995. My meds had it basically under control, but now the new doc doesn't want to prescribe them. He doesn't believe pain meds are effective. I haven't actually seen him but am supposed to on Wed the 20th. I am so stressed. I have lost faith the my rsd will be under control again.
I hope I am wrong about the new pain doc. He did mention a pain pump. Has anyone ever had one? If so, was it helpful? And do you still have it? Any advice would be appreciated. Thanks.
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I can't think of any possible reason that a doctor who truthfully believes pain meds are ineffective would then recommend a procedure with risks (the insertion and maintanence of a pain pump) AND the need for ongoing pain meds through said pump. What the heck is that all about ?
I'm sorry to say, I have the same reservations you are having about this new doctor. I don't care if RSD were so rare there were only 2 other known cases......you've been dx'd and have tests to back that up. This new doc hasn't even seen you yet.
I don't think we have to go too far out on a limb to guess that this new pain doc does NOT have a lot of experience with RSD patients.
None of the pain management docs that I have seen actually write prescriptions for ongoing meds (narcotics or others). They have ALL been in practices that only do procedures.....like nerve blocks, trigger point injections, or the insertion of pain pumps or SCS's. Those procedures can also help many of us, but I've had to look further to get ongoing help managing my prescriptions.
Are you near a major metropolitan area ? Have you ever been followed by a neurologist ?
Are you already off your meds ? Or just running low ?
There are a few posters here who have a pain pump. Hopefully, they'll see your post soon and respond. You might also want to do a search on this forum for "pain pumps"
I wish I could sound more hopeful about your upcoming visit. Maybe this doc will surprise you. I hope so !