[QUOTE=Synnove;966674]
Quote:
Originally Posted by Marie33
Hi Marie33
I have had EMG some time ago, negative. I started to feel real sick with a lot of different symptoms later on. Now I have a lot of numbness. Numbness has increased over the last few months. Now I have numbness up to knees. Urinary problems has increased, due to neurogenic bladder. I have had MRA s of head, neck and brain to rule out systemic vasculitis, negative, thank God. I have had ct scan of lungs. Latest, I had bronchoscopy, it showed some bilateral bronchial stenosis. I have had cardiac work up. Now I am waiting and hoping this new neurologist can find the reason for my neuropathy. I am sceduled for EMG of , I think all 4 extremeties. We did discuss regarding a nerve biopsy. I want that biopsy, it might help in diagnosins. When the burning pain first started, the rheumatologist prescribed Neurontin, than she later changed it to Lyrica. Now that is not holding And this medicine do cause dizziness. And it is expensive.
I hope we all get better sooner than later.
|
Hi Synnove
When did your neuropathy and all your symptoms start? Why did you have your first EMG? Did you have a skin punch biopsy to dx your PN? I hear the nerve biopsy is painful and can injure the nerve and leave permenant pain and numbness. The golden standard test today for dxing small nerve neuropathy is the skin biopsy. Thats how I was finally diagnoised. Are your bladder, cardiac and lung issues related to something else , or is the neuropathy causing these problems for you?
My neuropathy started with burning feet and tingling in my calves. It slowly moved up to my arms and hands. Now I have pins& needles, buzzing, tingling in my arms, legs , hands and burning in my feet and sometimes on my torso. I do not have any numbness. Are you gonna stay with the lyrica, why take a higher dose if the 400mg is not helping? Have you thought about trying something else? Do you take any supplements like Aceytal L Carnitine, R Lipoic Acid or Coq10. I am taking these and I find they are helping, but its a slow process. Hang in there..
