Hey, Francine.
Welcome to NT!

I hope you find help and friendship here.
I know that fibro can often indicate other underlying neuro issues. Have you had an MRI yet? Many people initially dx'ed with fibro have conditions like Arnold-Chiari Malformation (herniated cerebellar tonsils). ACM can only be found on an MRI, and even a tiny herniation can bring on debilitating symptoms, so it's worth a look.
LIZARD