Hi, thank you Mrs. D
I think I need to explain my condition better.
Neuropathy started 18 months ago, first I thought it was MS, due to Lesions of demyelating suspessious of MS. I think it has just about been ruled out now. I have had repeat MRI every 6 months. I had the MRI due to cerebral aneurysm. The aneurysm was repaired, and I went on to recover. Was on dual antiplatelet theraphy. Had a small stroke due to coming off the Plavix too soon, so I was off work for a little bit. Was started back on Plavix. Had a few cerebral angiograms to check on aneurysm stent, due to suspecious stenosis noted.
I have an old C-6-7 herniated disc, this have had some flareups witht the radiculopathy type pain usually treated with Medrol dose pack. So I know what "pins and needles are
In April I had acute brachial neuritis with neuromuscular i8nvolvement. Tthe pain was the kind of pain one has in labor pain. I could actually see the muscle going in to spasm in arm.

Then in the fall I started to have autoimmune type of symptoms with Levido Reticularis everywhere on skin, mostly extremeties, and aslso other discoloration of skin on legs. Was diagnosed with vasculitis

The Neuropathy pain started late fall, and rheumatologist started me first on Neurontin, than changed it to Lyrica in January. It has helped the pain, but makes me a little dizzy.

I have now seen a neurologist that Has finally diagnosed the small fiber neuropathy. He is a professor at a medical school at University Hospital specializing in neuropathy. He took a good history and did a good neuro examee. He said" for sure this is polyneuropathy" He said no need for nerve biopsy. He also notised in my medicak that I had club foot as a child which I had surgery for as infant and repest in first few years. He concentrated on this and started to investigate re genetic history. I did not know there was a connection.
I now hav scedule EMG.
Lately: Due to the fact that I had commented regarding Xanax, I must mention that I have never been a person taking any kind of medicine like this before. I took Percocet only once or twice in my life, and that was after surgery, and that is it. My PCP had ordered it due to I had so much struggle and worries with all this illnesses. I have been taking )0.25mg daily as needed, and taken it sometimes at night. Belive me, I have had sleepless nights. And I am aware of side effects. Regarding the Lyrica, I know it needs to be slowly tapered off.
My neuropathy pain is not like only pain under feet( I actually never had that, like diabetic pain) Now I have burning all over body, and tremor like feeling down inside my spine. The neurologist said it is neuropathy. I have many nervesd involved, also autonomic.
But it is very good you educate regarding the danger of Benzodiazepans.

My goal is that the doctor find the cause of the neuropathy. I think I might need a LP.
Hopefully the cause is something treatable ( I know there is some that are not) I think they have ruled out Wegeners, even though the bronchoscopy showed bronchial stenosis. Yes I have had all the blood tests, Lyme negative, Sjogren negative( even had lip bx), was treatedall lupus tests negative. IgM IgG negative, HAD mra OF ALL THE MAJOR BLOOD VESSELS. NEG

So I was saying, I do not have diabetes, I do not have alcohoIism, do not have HIV, I do not hav liver disease, I do not use any drugs, so now we have to find any auto immune. Perhaps it is due to the vasculitis, or possibly to some genetics

I have stopped Lipitor, And stopped Plavix, stopped Plaquinil for now due to eye problems. I take some supplements

Thanks for support, rest asure, I do not have any dependancy problem, I only mentioned that this had helped for my sleeping at night.
I now