I understand feeling like you're going crazy. I felt like that in the very beginning (before surgery). Every time I went to the doctor I had a new complaint. It was really confusing and unsettling.

I had unsuccessful surgery 8 years ago. In the time since, I have more widespread pain, too. For instance, headache pain is now in different places where it used to be mainly behind my left eye. Nerve pain used to follow the ulnar and radial nerve, now it includes the medial nerve, too. I've had similar "spreading" pain in all the areas of my body where I have pain.

My own belief is that the neurogenic pain is poorly understood, the response to surgery is unpredictable and the progression of the symptoms (and, indeed, whether the condition is progressive) is up for debate. Vascular symptoms, and their response to surgery, seem pretty straight forward. As for neurogenic TOS, it's a black box. My two cents.