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Old 03-19-2013, 11:31 PM
tkayewade tkayewade is offline
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Join Date: Jun 2012
Location: Texas!!!
Posts: 326
10 yr Member
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
10 yr Member
Default hi

I agree research is key...treatments and docs. My first pain managament Dr. Was terrible, waited hours. Very condescending. Told me I failed a drug test. Never done drugs in my life. so I drove to get my own test. Passed and got a new Dr. He was very aggressive. I had tendon repair in June 2011, never walked and mri diagnosed red in Sept 2011. Used pain mgmt with meds until March 2012. Had three sympathetic blocks, had thoracic spinal cord stim trial June 2012. Never gotten less than 70% relief except dreaded winter. My permanent was implanted July 10 2012. Never looked back. A little background. I was a 5 K runner and triathlete. The stim let me trade walkers, canes., and wheelchairs tor walking.

Thed has not been rosy. I fell in August 2012 and had a revision. I developed bilateral pulmonary emboli and nearly died. Once we passed that fiasco, the stimulator has been wonderful. So wonderful that when my hands developed rapid spread; I got another one.

There are many options out. There are pros and cons to most. The twin scs work for me and not at all for some. Anyway rsd is overwhelming and id be willing to chat about my
experience anytime I have very few friends from pre rsd. Just dont understand i guess. Luckily made a few new here. I remember being in your shoes.

Pain management is definitely the way to go. I do my own physical therapy. My insurance doesn't cover and it is too rich for my blood right now. As a new rsd'er; pt is important. My Dr always days movement helps even though it hurts. Hope I. Helped. I rambled. Post surgery lil. Let me know if I can help!
TK


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