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Old 03-20-2013, 11:14 AM
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cyclecrash cyclecrash is offline
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Join Date: Nov 2012
Location: Ontario, Canada
Posts: 267
10 yr Member
cyclecrash cyclecrash is offline
Member
cyclecrash's Avatar
 
Join Date: Nov 2012
Location: Ontario, Canada
Posts: 267
10 yr Member
Default Trying to return to "baseline"

I know it's only temporary but I feel I've gone backwards by about a month and I'm so frustrated and just want to vent, although I'll take any advice also!

On Friday I went for my first, doctor ordered, yoga class. I woke up already feeling out of sorts. Lets start using numbers here... if 0 is my normal "baseline" of how I feel after resting and behaving, I woke up feeling about a 2 over it. I thought that "gentle yoga for mature folks" would be good for me and might help me feel better. I also want to follow all of the doctors orders and give it my all to get better. So I had my son take me.

It was one hour of meditating and stretching. VERY gentle and no actual Yoga really at all. I thought it was perfect for a start. When it was over I had to call a taxi to take me the 5 minutes home and almost got hit by a car crossing the street to the taxi. I was very confused and did not look before crossing the street. I got home and was still very confused. The rest of the day went downhill from there with confusion, fatigue, dizziness, blurred vision all being worse.

By the end of the day I was about an 8 over baseline. I went to bed hoping it would get better, it didn't, I had to push myself all through the next day. The day after that was a really bad headache day and I felt even worse. Headaches have not been a problem with me lately so this was not good.

Then on Monday, still not recovered from the yoga (about a 4 over baseline), I had a two hour assessment with a "Health Management Consultant" from my long term insurance company. They wanted to discuss return to work. This was VERY tiring. Questions were about what I am doing now with my days, what my job consists of, what my symptoms are and how they impact work and then of course the "trick" questions... am I really off taking care of a sick parent, child, looking for other work on the side, doing drugs, socializing all the time, etc. By the time she left I was stumbling and so confused. In about two weeks I will know what they think about my returning to work. Trying not to stress about it. I'm nowhere near ready.

On Tuesday I had an appointment with my vestibular therapist. She would not do full therapy after taking one look at me and talking to me for a bit. We did about half of what we normally do and she said I need to rest to return to baseline. I have had to cancel my NP appointment for today.

I feel like I've gone back about a month in my recovery. I know/hope it won't take a month to get back to where I was but I'm very frustrated. I don't think it's fair for the insurance companies to put us through these tests and appointments and actually make us WORSE and set us back in our recovery. Is there not some kind of patients rights or something!? I know MsRrio and others are going through worse/similar things and I don't understand how it can be allowed.

I will be spending the next two days doing nothing but recovering and hope to see my number return to baseline and I hope that I haven't created a new/worse baseline by setting myself back.

I am sorry this post is so long, it was too long for me too! I hope you are all having a good day.

CC
__________________
I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!

Last edited by cyclecrash; 03-20-2013 at 11:18 AM. Reason: added some thoughts
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