Quote:
Originally Posted by Debi Brooks
We’re working on some exciting projects at the Michael J. Fox Foundation designed to help researchers better understand the connection between family and individual medical history, risk factors, symptoms and medication activity of people with Parkinson’s.
As part of this effort, we’re looking to understand the nature of information exchanged between patients and doctors, especially during a doctor’s appointment. We’ve put together a short survey for people with Parkinson’s to help guide our efforts.
If you would like to take this survey, please follow this link: http://www2.michaeljfox.org/site/Sur...SURVEY_ID=2463
Your answers are anonymous and will only be shared within the Foundation. Feel free to be as detailed with your answers as you see fit. Also, please share with other patients who might be interested in informing our process.
Thank you for your help and guidance.
Best, Debi |
Dear Debi,
This forum embodies some very intelligent people who are self-regulating.
My "primary care provider" for me is****me***. My present support team includes massage therapists, a dentist,music therapist/shaman, an upper cervical chiropractor, a naturopath,and friends....no neuro ,no MDS, or even MD.
Would you consider broadening your survey to include the massive pder population who are seeking complimentary and integrative therapies ? This would engender a very broad range of questions that I'm wondering if you would find "relevant".
your survey question #2: - "What does your doctor ask you during every visit?" my doctor (me) asks (me)..........where does the fear come from?(not that the answer to that is a solution to the problem)
Kind regards,
Sharilyn