Kymmie,

Breathe girl, don't let this danged thing panic you I read this thread with such confused thoughts. On the one hand I was so relieved to hear someone else describing things I've felt or I feel now, on the other it kind of scared me to think about all this again - I've been doing the box thing....put it away and try not to look at it

My CRPS started in my left knee after a minor op, and stayed there for about 10 months. Then I started getting symptoms in the toes of my left foot. It gradually spread to my whole foot and ankle, and up my thigh to my buttock. I also have it in the first two toes of my right foot now, and that scares me witless. In the last three months I have been having symptoms in my left arm, not awful, but in that insidious way it seems to work. One day you think it's ok, the next omg its bad and you can't ignore it. Sometimes I think I'm going a bit crazy.

I've also had electric shock pains over my whole body, including my face, and I quite often have flushes on the left side of my face, normally in the morning. The left side of my face often feels as though I have slight sunburn. I am at the moment having problems with body temp, sometimes I feel freezing and shiver, other times I feel burning hot...and it can change within a minute. I get tingles, prickles and little stabby pains all over me at random times. More on those bad days of course.

I've done a lot of reading about this thing, like most of us I think lol, and CRPS can affect so many things.... I'm convinced this type of stuff is the CRPS playing nasty little games. The only way I can deal with this stuff is by trying to pretend its not happening and distract myself and my body. It does settle in the end. I don't think it means your CRPS spreading everywhere.

Really good luck, it is scary sometimes, and it's tricky to try and get on with life when things like this are going on and you feel anything but normal. You're not alone with this, and I hope it calms down for you soon.

Bram.