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Member
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Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
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Member
Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
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Hi,
So sorry to hear of your situation. It took 8 years for me to get a diagnosis. I know what you are going through. I am wondering if you have ever had a head injury? Also, my dad has really low blood pressure like this that fluctuates drastically from just moving position of body. He was just diagnosed with Shy-Dragers which is a very rare condition that involves low blood pressure. Have you had your blood sugar checked? Do you have pain? What other symptoms do you have besides the blood pressure and extreme fatigue? I take it you have been to a neurologist? What about a movement disorder specialist? Again, these are just suggestions. Please don't give up. Someone will find the answer. Maybe you are in the initial stages of something and they are just not yet able to diagnose it. Others will come along and give you help. Welcome. You are not alone.
Brain 
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Brain patch.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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