Hi again Amanda,

Well Weakness eh!

Unfortunately, weakness is something that goes with the territory with CIDP.
Eventually you'll be able to judge for yourself when your weakness is getting to a point of scary.
The IVIG is hopefully also going to help a little with your weakness.

Just keep in mind that we NEED to work to keep our muscles sufficiently strong, because, take it from me, Atrophy is NOT nice. It will impede you getting to know this condition by throwing up all of these separate muscles aches and issues.

As for the weakness, try to listen to your body and not give yourself any guilt trips, because this or that didn't get done. I know it's difficult with a bub ( my bub is 12 and knows EVERYTHING apparently!) but you are the best judge of you.
Try not to overdo the exercise or your body will begin to let you know, with an almighty slump.

Check the stickies for some neuropathy sites and print out a range of exercises to show your PT and work together.

Personally I favour hydrotherapy. But then again, I am a water baby!


all the best

Have a lovely day


Noong