thanks for the replies I'm sorry if constant or near constant movement isn't working for everyone

I think it really depends what stage of physical limitation you're at I really thought my left hand/arm were cooked for life it didn't feel like it was attached to me and had me in just the worst discomfort I've had hence the amputation consideration before meeting the NP

I rub my hands together I'm forever brushing surfaces with them and flexing and I know it's saved my life.

I'm learning to play guitar and off on holiday this Friday, it's great to be going the right way - it still hurts but nothing like before

Now that I'm active I'm also looking for ways to spread the word about RSD but more importantly people need to know it must be moved - as much as possible for you

I wish you all the best, contact me if you want any more info