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Member
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Join Date: Mar 2013
Location: Arizona
Posts: 453
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Member
Join Date: Mar 2013
Location: Arizona
Posts: 453
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Therapist etc.
Hi, Kijo,
I agree with Catra and Nanc. I guess because my P.T. was actually my first "advocate". She (they) saw all the classic visual and range of motion issues in my wrist and hand and called my Ortho. surgeon to have him see me ASAP. They had wrongly told me for 3 wks. to ice and elevate.
DO NOT USE ICE!
I had been referred to pain mgt. specialist - bad luck with him - he had to "google" CRPS.
Finally found my own pain mgt. specialist and what luck! Not only was she familiar with RSD/CRPS she had it in her foot as a teenager and is now in remission. She even used a wheelchair for a couple of years.
She does my nerve blocks using both flourscope and ultrasound. She has me on a whole "cocktail" of meds as well. I don't like the drugs much but for now I guess they are neccessary.
I recommend asking your primary care Dr. to refer you to a good one who may be familiar with your condition. Then try to have them coordinate your care, such as having everyone share info. Your therapist and Surgeon should share records with pain mgt. and vice-versa.
P.T. should work you enough at least so you don't lose any more, so there is still some pain but they should not push a crps patient as far as they normally would because it can worsen the cycle of pain.
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