Bram - I just want to say I completely get what you are saying. I am one year into it but have it whole body. Those of us on this board get it because we are living it with you. I have also found that a couple of my friends ... weren't friends at all. Rather than fretting over those lost friends,... I have to save my energy to cope day by day. Now I need help to do many things and I hate it. Some friends cannot fathom how bad the pain gets. Tonight is one of those nights; my body is like a flaming inferno. take care,