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Old 03-27-2013, 06:45 AM
glenntaj glenntaj is offline
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Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
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glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
Default Dave--

--has she been tested to see if she has chronic inflammatory demyelinating polyneuropathy (CIDP), which is often considered to be the less acute onset, lingering version of Guillain Barre (though there is some overlap in possible presentation)?

There are some people who have what appears to be a Guillain Barre episode but the damage lingers for far longer, or they plateau in recovery and do not get any better from that point (unless, sometimes, from immune-modulating therapies such as IvIg). And CIDP can have an acute or sub-acute onset, and then have a relapsing or remitting course, almost like a peripheral nerve version of multiple sclerosis. Many researchers think of Guillain Barre and CIDP as similar processes along a continuum in terms of onset and effects.

I'm not saying proper nutrition or supplementation won't help--these are good ideas for any of us with any condition--but depending on where evaluations are done and who does them, all options may not have been considered. It does sound as if your wife could use a work up at a tertiary center that specializes in neuropathy and neuromuscular conditions.

Take a look at:

http://neuromuscular.wustl.edu/antibody/gbs.htm

http://neuromuscular.wustl.edu/antib...mdem.html#cidp
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