Quote:
Originally Posted by glenntaj
--has she been tested to see if she has chronic inflammatory demyelinating polyneuropathy (CIDP), which is often considered to be the less acute onset, lingering version of Guillain Barre (though there is some overlap in possible presentation)?
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Hi Glenn, thank you for your information. Approximately 6-8 months after onset, our doctors decided it wasn't CIDP, and confirmed GBS. Maybe they were wrong. In any case, IVIG was given many times in the first few weeks after onset, as well as plasmapheresis, but neither one since.
It is so frustrating to see Web sites on GBS that talk about IVIG like it saves the day, and then say most patients "have a full recovery" thereafter. Grrr! I suppose a diagnosis of CIDP might call for a course of IVIG treatment, months or years after initial onset? I'll inquire of our pain doc.
Thanks!
Dave