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Member
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Join Date: Nov 2012
Location: Ontario, Canada
Posts: 267
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Member
Join Date: Nov 2012
Location: Ontario, Canada
Posts: 267
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I had to deal with this years ago with my fibromyalgia and again now with PCS. Not surprisingly it's the same people that said things back then that are saying things now... but she looks fine... she just has to try harder and get over it....
I don't have a lot of good advice because I still find it very painful and hard to deal with! All I do is distance myself from those people. I don't even try to convince them. You have to try to ignore it for your own sanity.
Just wanted to let you know that you're not alone in this one, unfortunately.
I hope today is a good day.
CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.
Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.
Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.
The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!
My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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