Thanks Kim,

I must have been in a hurry (I am...need to shower before that dentist appt). You covered a whole big area I just missed. Knowing what I know now, I would certainly start with an elimination diet (SCD a good place to start) and nutrition to try and control seizures.

I've also met other people with pyroluria... (resulting in deficiencies of B6, zinc) who had seizures that resolved with proper nutritional therapy.

These things our neurologists don't know or don't tell us about.

Cara