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Old 04-01-2013, 05:36 AM
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mrsD mrsD is offline
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Join Date: Aug 2006
Location: Great Lakes
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mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Please don't delay... your symptoms could be from excess bradykinin build up. There is a PD poster here that is a pharmacist and when he read about my problem, told me on a thread that he knew of 3 people in his practice who died from ACE inhibitor reactions. And my son's friend's dad ended up in the hospital when I had my reaction 2 months ago!
I had been on Lisinopril for 10 yrs, and 2 other ACE drugs before that!

My bladder thing was truly agony. Your clustering of symptoms may really be from the lisinopril. My doctor had me keep a blood pressure log (taken 3 times a day) for 2 months after this and it has been perfect since I stopped the lisinopril. That reaction was making my BP swing and go higher! I'd take my tablet at night and wake up 2-3 hours later with the most terrible pain in my bladder, and as the day went on, it would become less, then I'd take the next agony pill, and the cycle would begin again! I also had the abdominal pain too. The discolored skin I had on my arms, is finally fading now. I have about 10% of it still. It was due to the drug as well.
This whole reaction was very sneaky, and I attributed it to allergies and my arthritis. Boy, was I ever mistaken! And I am the first patient my doctor has seen with this...in her 40yr career!

I found a natural treatment for blocking bradykinin receptors. It is Bromelain from pineapples! This enzyme comes from the stems of the fruit not the sweet parts. When made into an enteric coated pill, it survives the stomach acid, and will be about 40% absorbed and get into the body, and act as an anti-inflammatory and blocker of the receptors for the excess bradykinin. I have found it very helpful. 2 tablets a day of 500mg. I could only find one source of it...LEF brand.
http://www.amazon.com/Life-Extension...ords=bromelain
The capsules or uncoated tablets will not work as well.


Quote:
Originally Posted by Djhasty View Post
MrsD, thank you for the info. No I didn't know. I've been on lisnopril for 8 years. It is about time I had it reevaluated anyway due to the hi and low swings. Haven't read all your links yet, but I'll finish 'em up tonight or tomorrow. It is all very interesting and concerning.

I do have RSD in my bladder too. I often get infections. The connection you mention between bladder infections and lisinopril concerns me for this reason.

As far as breathing, I was just diagnosed with restrictive lung disease. I'm on Advair until I can get in to see the Pulmonary Specialist.

I have a sister with MCTD (currently in remission). From what I read, it is a precursor to Lupus. I'm not sure there is any familial connection, but when you mention it in your post, it sent up another flag for me.

And, the swelling and HAE ...

Sorry about all your difficulties. Glad to hear that your BP is back under control with the one new medication without further complications. Hope you will be recovered soon from those complications. Also hoping for better days ahead for you. Thank you again.
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"Thanks for this!" says:
Djhasty (04-03-2013)